Twin Cities ALS Research Consortium
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 5 Trials 
10 Trials

   

Trial + Data / EventsStatusPhNRegionInterventionsSponsorConditionsPrimary complStudy compl
Walk, David
NCT03202017: Lung Volume Recruitment Combined With Expiratory Muscle Strength Training in ALS

Completed
N/A
23
US
Expiratory Muscle Strength Training (EMST), EMST + Lung Volume Recruitment (LVR)
University of Minnesota
Amyotrophic Lateral Sclerosis
12/21
12/22
NCT05597436: Intermediate-Sized Expanded Access Study

No Longer Available
N/A
US
Trehalose, SLS-005 Intravenous Trehalose Injection 90.5 mg/mL
Seelos Therapeutics, Inc., Massachusetts General Hospital, National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH)
Amyotrophic Lateral Sclerosis
 
 
NCT06735014: Multicenter ALS Imaging Study

Recruiting
N/A
90
US
Magnetic Resonance Imaging, Plasma neurofilament light chain (NfL) quantification
University of Minnesota, Food and Drug Administration (FDA), Minnesota Office of Higher Education
Amyotrophic Lateral Sclerosis, ALS
08/27
08/28
INC-6601, NCT01193075: Natural History Evaluation of Charcot Marie Tooth Disease (CMT) Types CMT1B, CMT2A, CMT4A, CMT4C, and Others

Recruiting
N/A
5000
Europe, Canada, US, RoW
Michael Shy, Fondazione I.R.C.C.S. Istituto Neurologico Carlo Besta, Johns Hopkins University, National Institute of Neurological Disorders and Stroke (NINDS), King's College Hospital NHS Trust, Nemours Children's Hospital, Stanford University, University of Pennsylvania, University of Rochester, Children's Hospital of Philadelphia, Sydney Children's Hospitals Network, Rare Diseases Clinical Research Network, Muscular Dystrophy Association, National Institutes of Health (NIH), Charcot-Marie-Tooth Association, Massachusetts General Hospital, Cedars-Sinai Medical Center, University of Miami, University of Minnesota, Connecticut Children's Medical Center, University of Colorado, Denver, The National Hospital for Neurology and Neurosurgery, Dubowitz Neuromuscular Centre
Charcot Marie Tooth Disease
12/26
12/26
INC-6602, NCT01193088: Genetics of Charcot Marie Tooth (CMT) - Modifiers of CMT1A, New Causes of CMT2

Recruiting
N/A
1050
Europe, US, RoW
University of Iowa, National Institute of Neurological Disorders and Stroke (NINDS), Muscular Dystrophy Association, University of Rochester, University of Pennsylvania, King's College Hospital NHS Trust, Sydney Children's Hospitals Network, Children's Hospital of Philadelphia, University of Miami, Johns Hopkins University, Fondazione I.R.C.C.S. Istituto Neurologico Carlo Besta, Cedars-Sinai Medical Center, Nemours Children's Clinic, Stanford University, University of Minnesota, Massachusetts General Hospital, University of Colorado, Denver, Children's National Research Institute, University of Michigan, St. Jude Children's Research Hospital, Connecticut Children's Medical Center, Seattle Children's Hospital, The Hospital for Sick Children
Charcot-Marie-Tooth Disease, Type Ia (Disorder), HMSN
12/26
12/26
NCT02567136: Imaging Biomarkers in ALS

Active, not recruiting
N/A
30
US
University of Minnesota
Amyotrophic Lateral Sclerosis, Primary Lateral Sclerosis
09/25
09/25
NCT05966038: ALS/MND Natural History Study Data Repository

Recruiting
N/A
5000
Europe, US
Massachusetts General Hospital, Henry Ford Health System, Northwestern University, Temple University, St. Louis University, University of Florida, University of Minnesota, Virginia Commonwealth University, Fondazione Serena Onlus - Centro Clinico NeMO Milano, Providence Health & Services, University of Pittsburgh, Istituti Clinici Scientifici Maugeri SpA
ALS, PLS, MND (Motor Neurone DIsease), Kennedy Disease, PMA - Progressive Muscular Atrophy, PBP - Progressive Bulbar Palsy
12/30
12/30
Martinson, Cherie
CAPTURE, NCT03489278: Clinical Procedures to Support Research in ALS

Recruiting
N/A
1200
US
University of Miami, Muscular Dystrophy Association, National Institute of Neurological Disorders and Stroke (NINDS), National Center for Advancing Translational Sciences (NCATS), National Institutes of Health (NIH)
Amyotrophic Lateral Sclerosis, ALS-Frontotemporal Dementia, Primary Lateral Sclerosis, Progressive Muscular Atrophy
06/25
06/25
Maiser, Samuel
COMBAT-ALS, NCT04057898 / 2019-003549-14: Evaluation of MN-166 (ibudilast) for 12 Months Followed by an Open-label Extension for 6 Months in Patients with ALS

Recruiting
2/3
230
Canada, US
MN-166, ibudilast, placebo
MediciNova
Amyotrophic Lateral Sclerosis
12/25
12/26
CAPTURE, NCT03489278: Clinical Procedures to Support Research in ALS

Recruiting
N/A
1200
US
University of Miami, Muscular Dystrophy Association, National Institute of Neurological Disorders and Stroke (NINDS), National Center for Advancing Translational Sciences (NCATS), National Institutes of Health (NIH)
Amyotrophic Lateral Sclerosis, ALS-Frontotemporal Dementia, Primary Lateral Sclerosis, Progressive Muscular Atrophy
06/25
06/25

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