University of Rochester Medical Center, Department of Neurology
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 8 Trials 
9 Trials

   

 
Trial + Data / EventsStatusPhNRegionInterventionsSponsorConditionsPrimary complStudy compl
Moxley, Richard T
NCT00082108: Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry

Recruiting
N/A
3000
US
University of Rochester, National Institute of Neurological Disorders and Stroke (NINDS)
Myotonic Dystrophy, Facioscapulohumeral Muscular Dystrophy, Muscular Dystrophy, Myotonic Dystrophy Type 1, Myotonic Dystrophy Type 2, Congenital Myotonic Dystrophy, PROMM (Proximal Myotonic Myopathy), Steinert's Disease, Myotonic Muscular Dystrophy
06/25
06/25
Thornton, Charles
NCT00082108: Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry

Recruiting
N/A
3000
US
University of Rochester, National Institute of Neurological Disorders and Stroke (NINDS)
Myotonic Dystrophy, Facioscapulohumeral Muscular Dystrophy, Muscular Dystrophy, Myotonic Dystrophy Type 1, Myotonic Dystrophy Type 2, Congenital Myotonic Dystrophy, PROMM (Proximal Myotonic Myopathy), Steinert's Disease, Myotonic Muscular Dystrophy
06/25
06/25
NCT03981575: Estab Biomarkers and Clinical Endpoints in Myotonic Dystrophy Type 1 (END-DM1)

Recruiting
N/A
700
Europe, Canada, US, RoW
Virginia Commonwealth University, University of Rochester, Stanford University, Ohio State University, University of Florida, University of Iowa, Ludwig-Maximilians - University of Munich, Fondazione Serena Onlus - Centro Clinico NeMO Milano, The Methodist Hospital Research Institute, Radboud University Medical Center, University College London Hospitals, University of California, Los Angeles
Myotonic Dystrophy 1, DM1
10/26
12/26
Tawil, Rabi
NCT03458832: Clinical Trial Readiness to Solve Barriers to Drug Development in FSHD

Recruiting
N/A
320
Europe, US
FSHD-specific functional rating scale, FSHD-COM, Electrical Impedance Myography, EIM
University of Kansas Medical Center, National Institute of Neurological Disorders and Stroke (NINDS), FSHD Society, Friends Research Institute, Inc., Muscular Dystrophy Association, AFM Telethon, University of Rochester, Leiden University Medical Center
Facioscapulohumeral Muscular Dystrophy
12/26
03/27
MOVE FSHD, NCT04635891: Motor Outcomes to Validate Evaluations in FSHD

Recruiting
N/A
450
Europe, Canada, US
University of Kansas Medical Center, FSHD Society, Inc., Friends Research Institute, Inc., University of Rochester, University of Nevada, Reno, FSHD Canada, Avidity Biosciences, Inc., AMRA Medical, Seattle Children's Hospital, Dyne Therapeutics, Hoffmann-La Roche
FSHD
12/26
01/27
NCT00082108: Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry

Recruiting
N/A
3000
US
University of Rochester, National Institute of Neurological Disorders and Stroke (NINDS)
Myotonic Dystrophy, Facioscapulohumeral Muscular Dystrophy, Muscular Dystrophy, Myotonic Dystrophy Type 1, Myotonic Dystrophy Type 2, Congenital Myotonic Dystrophy, PROMM (Proximal Myotonic Myopathy), Steinert's Disease, Myotonic Muscular Dystrophy
06/25
06/25
Coordinator, Registry
NCT00082108: Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry

Recruiting
N/A
3000
US
University of Rochester, National Institute of Neurological Disorders and Stroke (NINDS)
Myotonic Dystrophy, Facioscapulohumeral Muscular Dystrophy, Muscular Dystrophy, Myotonic Dystrophy Type 1, Myotonic Dystrophy Type 2, Congenital Myotonic Dystrophy, PROMM (Proximal Myotonic Myopathy), Steinert's Disease, Myotonic Muscular Dystrophy
06/25
06/25
MRTR, NCT02435940: Inherited Retinal Degenerative Disease Registry

Recruiting
N/A
20000
US
Foundation Fighting Blindness
Eye Diseases Hereditary, Retinal Disease, Achromatopsia, Bardet-Biedl Syndrome, Bassen-Kornzweig Syndrome, Batten Disease, Best Disease, Choroidal Dystrophy, Choroideremia, Cone Dystrophy, Cone-Rod Dystrophy, Congenital Stationary Night Blindness, Enhanced S-Cone Syndrome, Fundus Albipunctatus, Goldmann-Favre Syndrome, Gyrate Atrophy, Juvenile Macular Degeneration, Kearns-Sayre Syndrome, Leber Congenital Amaurosis, Refsum Syndrome, Retinitis Pigmentosa, Retinitis Punctata Albescens, Retinoschisis, Rod-Cone Dystrophy, Rod Dystrophy, Rod Monochromacy, Stargardt Disease, Usher Syndrome
06/37
06/37
Hamel, Johann
NCT00082108: Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry

Recruiting
N/A
3000
US
University of Rochester, National Institute of Neurological Disorders and Stroke (NINDS)
Myotonic Dystrophy, Facioscapulohumeral Muscular Dystrophy, Muscular Dystrophy, Myotonic Dystrophy Type 1, Myotonic Dystrophy Type 2, Congenital Myotonic Dystrophy, PROMM (Proximal Myotonic Myopathy), Steinert's Disease, Myotonic Muscular Dystrophy
06/25
06/25

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