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Trial + Data / Events	Status	Ph	N	Region	Interventions	Sponsor	Conditions	Primary compl	Study compl
Quitmann, Julia
QUALIFY, NCT05959668: Development of Health-related Quality of Life Instrument for Patients With Cystinosis	Recruiting	N/A	300	Europe		Cystinose Stiftung, Cystinosis Research Network, Leben eben! Cystinose-Selbsthilfe e.V.	Cystinosis	05/25	05/25
NCT05603936: Adaption and Testing of the Quality of Life in Short Stature Youth (QoLISSY) Questionnaire for Parents With Children From 0-4	Recruiting	N/A	168	Europe	Questionnaire	Universitätsklinikum Hamburg-Eppendorf, Bundesverband Kleinwüchsige Menschen und ihre Familien e.V., Pfizer	Achondroplasia, Small for Gestational Age, Growth Hormone Deficiency	09/23	12/23