- |||||||||| colchicine / Generic mfg.
Enrollment change, Trial completion date, Trial termination: Heat Intolerance in the Group of FMF Patients (clinicaltrials.gov) - Apr 4, 2024 P=N/A, N=7, Terminated, N=15 --> 7 | Trial completion date: Dec 2025 --> Mar 2024 | Enrolling by invitation --> Terminated; unable to recruit patients
- |||||||||| colchicine / Generic mfg.
Trial completion date, Trial primary completion date: Heat Intolerance in the Group of FMF Patients (clinicaltrials.gov) - Apr 20, 2019 P=N/A, N=15, Enrolling by invitation, N=15 --> 7 | Trial completion date: Dec 2025 --> Mar 2024 | Enrolling by invitation --> Terminated; unable to recruit patients Trial completion date: Dec 2018 --> Dec 2025 | Trial primary completion date: Aug 2018 --> Aug 2025
- |||||||||| Trial completion: Evaluation of an Integrated Care Project (clinicaltrials.gov) - Feb 16, 2019
P=N/A, N=3960, Completed, Trial completion date: Dec 2018 --> Dec 2025 | Trial primary completion date: Aug 2018 --> Aug 2025 Enrolling by invitation --> Completed
- |||||||||| Trial completion, Enrollment change, Trial completion date, Trial primary completion date: Potential Research Study Participant Registry (clinicaltrials.gov) - Feb 16, 2019
P=N/A, N=265, Completed, Enrolling by invitation --> Completed Recruiting --> Completed | N=200 --> 265 | Trial completion date: Jan 2025 --> Sep 2018 | Trial primary completion date: Jan 2025 --> Sep 2018
- |||||||||| Trial primary completion date: IPCRR: International Pachyonychia Congenita Research Registry (clinicaltrials.gov) - Nov 21, 2018
P=N/A, N=2000, Recruiting, Recruiting --> Completed | N=28 --> 10 | Trial completion date: Dec 2018 --> Apr 2018 | Trial primary completion date: Dec 2018 --> Apr 2018 Trial primary completion date: Dec 2058 --> Dec 2030
- |||||||||| Trial completion, Enrollment change, Trial completion date, Trial primary completion date: Registry for the Atopic Dermatitis Research Network (clinicaltrials.gov) - Mar 2, 2018
P=N/A, N=3386, Completed, Phase classification: P2 --> P2/3 Recruiting --> Completed | N=2600 --> 3386 | Trial primary completion date: Feb 2020 --> Feb 2018 | Trial completion date: Feb 2020 --> Feb 2018
- |||||||||| Reimbursement, Trial primary completion date: Evaluation of an Integrated Care Project (clinicaltrials.gov) - Jan 30, 2018
P=N/A, N=3960, Enrolling by invitation, Recruiting --> Completed | N=2600 --> 3386 | Trial primary completion date: Feb 2020 --> Feb 2018 | Trial completion date: Feb 2020 --> Feb 2018 Trial primary completion date: Dec 2017 --> Dec 2018
- |||||||||| Stelara (ustekinumab) / J&J
Trial completion, Trial primary completion date: Pilot Study of Ustekinumab for Subjects With Chronic Atopic Dermatitis (clinicaltrials.gov) - Dec 19, 2017 P2, N=32, Completed, Recruiting --> Completed Active, not recruiting --> Completed | Trial primary completion date: Mar 2018 --> Mar 2015 | Active, not recruiting --> Completed | Trial primary completion date: Mar 2018 --> Mar 2015 | Active, not recruiting --> Completed | Trial primary completion date: Mar 2018 --> Mar 2015
- |||||||||| Trial primary completion date: LUVIA: The Effects of Lutein and Zeaxanthin Supplementation on Vision in Patients With Albinism (clinicaltrials.gov) - Dec 14, 2017
P=N/A, N=28, Recruiting, Active, not recruiting --> Completed | Trial primary completion date: Mar 2018 --> Mar 2015 | Active, not recruiting --> Completed | Trial primary completion date: Mar 2018 --> Mar 2015 | Active, not recruiting --> Completed | Trial primary completion date: Mar 2018 --> Mar 2015 Trial primary completion date: Sep 2017 --> Dec 2018
- |||||||||| triamcinolone acetonide topical / Generic mfg.
Enrollment change, Trial withdrawal, Trial primary completion date, Adherence: Pediatric Atopic Dermatitis (AD) Internet Survey (clinicaltrials.gov) - Nov 1, 2017 P=N/A, N=0, Withdrawn, Trial primary completion date: Sep 2017 --> Dec 2018 N=40 --> 0 | Active, not recruiting --> Withdrawn | Trial primary completion date: Oct 2017 --> Oct 2014
- |||||||||| Humira (adalimumab) / Eisai, AbbVie
Trial completion: Clinical Trial Using Humira in Netherton Syndrome (clinicaltrials.gov) - Oct 18, 2017 P2, N=11, Completed, N=40 --> 0 | Active, not recruiting --> Withdrawn | Trial primary completion date: Oct 2017 --> Oct 2014 Active, not recruiting --> Completed
- |||||||||| colchicine / Generic mfg.
Trial primary completion date: Heat Intolerance in the Group of FMF Patients (clinicaltrials.gov) - Jul 21, 2017 P=N/A, N=15, Enrolling by invitation, Active, not recruiting --> Completed | Trial primary completion date: Oct 2019 --> Dec 2016 Trial primary completion date: Feb 2010 --> Aug 2018
- |||||||||| Thymoglobulin (anti-thymocyte globulin (rabbit)) / Sanofi
Clinical: Stem Cell Transplant (SCT) for Dyskeratosis Congenita or SAA (clinicaltrials.gov) - May 31, 2017 P2/3, N=36, Completed, Suspended --> Terminated; drug company is no longer making the drug Active, not recruiting --> Completed
- |||||||||| triamcinolone acetonide topical / Generic mfg.
Biomarker, Trial completion, Enrollment change, Trial primary completion date, IO biomarker, Biopsy: GNE-AD: A Study to Determine Serum and Skin Biopsy Biomarkers in Patients Receiving Topical Corticosteroid (TCS) and Following TCS Withdrawal (clinicaltrials.gov) - Apr 12, 2017 P4, N=11, Completed, Active, not recruiting --> Completed Recruiting --> Completed | N=15 --> 11 | Trial primary completion date: Jan 2017 --> Apr 2017
- |||||||||| triamcinolone acetonide topical / Generic mfg.
Trial primary completion date, Adherence: Pediatric Atopic Dermatitis (AD) Internet Survey (clinicaltrials.gov) - Mar 13, 2017 P=N/A, N=40, Active, not recruiting, Phase classification: P2 --> P2b Trial primary completion date: Oct 2016 --> Oct 2017
- |||||||||| Reimbursement, Trial primary completion date: Evaluation of an Integrated Care Project (clinicaltrials.gov) - Mar 9, 2017
P=N/A, N=3960, Enrolling by invitation, Trial primary completion date: Oct 2016 --> Oct 2017 Trial primary completion date: Nov 2015 --> Dec 2017
- |||||||||| Orfadin (nitisinone) / Astellas, SOBI
Trial primary completion date: Nitisinone for Type 1B Oculocutaneous Albinism (clinicaltrials.gov) - Jan 31, 2017 P1/2, N=5, Active, not recruiting, N=140 --> 17 | Recruiting --> Terminated | Trial primary completion date: Mar 2016 --> Aug 2016; By sponsor decision due to difficulty of recruitment Trial primary completion date: Dec 2017 --> Jul 2016
- |||||||||| AIMab7195 / Nestle
Trial completion, Trial primary completion date: Safety and Tolerability of XmAb (clinicaltrials.gov) - Jan 24, 2017 P1, N=72, Completed, Trial primary completion date: Dec 2017 --> Jul 2016 Active, not recruiting --> Completed | Trial primary completion date: Mar 2016 --> Sep 2015
- |||||||||| Enrollment open, Enrollment change, Trial primary completion date: Bleach Bath Treatment of Adults With Atopic Dermatitis (clinicaltrials.gov) - Dec 29, 2016
P=N/A, N=30, Recruiting, Active, not recruiting --> Completed Completed --> Recruiting | N=46 --> 30 | Trial primary completion date: Apr 2016 --> May 2017
- |||||||||| SB011 / Sterna Biologicals
Enrollment closed, Trial primary completion date: Efficacy, Safety, Tolerability, Pharmacokinetics and Pharmacodynamics Study of the Topical Formulation SB011 Applied to Lesional Skin in Patients With Atopic Eczema (clinicaltrials.gov) - Nov 8, 2016 P2a, N=26, Active, not recruiting, Recruiting --> Active, not recruiting Recruiting --> Active, not recruiting | Trial primary completion date: Jul 2015 --> Dec 2016
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